Appendix I — Participant Bill of Rights

As a person who shares information with Databrary, you have the right to:

• Be free of pressure from anyone else when deciding if you wish to share information
• Make up your mind about sharing information without being rushed
• Have the decision to share information with Databrary be separate from the decision to participate in research
• Be told what information is being shared with Databrary
• Be told if there will be no direct benefit to you
• Ask questions about Databrary at any time before, during or after you participate in a study or agree to share information
• Refuse to share data without penalty
• Ask to have your data removed from sharing on Databrary, without any penalty
• Receive a copy of your Databrary release form for you to keep
• Be assured that your identity will be kept in confidence by Databrary and its authorized researchers.

If you have any questions or concerns you can contact Databrary staff by email at contact@databrary.org. You may also ask the staff from the study you participated in for help.