7 Participant demographics
This report summarizes the demographic characteristics of participants in shared volumes on Databrary.
Owner data
All owners.
TODO: Fix importing of owners data.
The session-level CSV data are stored in a local directory that is not synched with GitHub. To generate the report, one must generate and save the data locally.
Overall
Databrary has demographic data for ~ \(n=\) 10725 individual participant-sessions. This number is an underestimate because the number of unshared volumes is 3-4x the number of shared volumes.
Age
Volumes and session
There are \(n=\) 147 shared volumes reporting age_days.
\(n\) participants and age distribution
The following summarizes the number of individual participant-sessions for whom there are data.
## age_grp
## <3m 3-6m 6m-1y 1-2y 2-3y 3-4y 4-5y 5-15y 15-20y
## 103 157 1176 3390 875 474 897 1527 74
## 20-25y >25y
## 308 411
Figure 7.1: Age distribution of < 5yrs
Figure 7.2: Age distribution of 5-15 year-olds
Figure 7.3: Age distribution of 15+ year-olds
Gender
Volumes and sessions
There are \(n=\) 153 shared volumes reporting participant_gender.
Race
Volumes and sessions
There are \(n=\) 136 shared volumes reporting participant_race.
\(n\) participants
| participant_race | Freq |
|---|---|
| 1/2 White, 1/2 Asian | 1 |
| African American and Puerto Rican | 1 |
| African American and White | 1 |
| American Indian or Alaska Native | 8 |
| Arab | 1 |
| Ashkenazi Jewish | 1 |
| Asian | 1185 |
| Asian and Hispanic or Latino | 1 |
| Asian and White | 2 |
| Biracial | 1 |
| Black and Asian | 1 |
| Black or African American | 1225 |
| Black or African American AND Native Hawaiian or Pacific Islander | 1 |
| Black or African American White | 1 |
| Black or African American, White | 1 |
| Black or African-American | 1 |
| Black/Mixed | 1 |
| Chose not to answer | 5 |
| Chose Not To Asnwer | 1 |
| Decline to State | 1 |
| Did Not Answer | 3 |
| Did not report | 1 |
| Dominican American | 1 |
| European White | 38 |
| H | 7 |
| Half Asian | 1 |
| Hawaiian or other Pacific Islander | 1 |
| Hawaiian or Pacific Islander | 1 |
| Hispanic/Mixed Race | 1 |
| I choose not to answer | 4 |
| I choose not to answer this question | 3 |
| Indian | 3 |
| Latino, Native American, white | 1 |
| Middle East | 1 |
| Mixed | 3 |
| More than one | 943 |
| More than one race | 1 |
| More than one race: Asian and White | 2 |
| More than one race: North african and asian | 1 |
| More than one race: White and Asian | 1 |
| More than one race: White and middle eastern | 1 |
| More than one race: White, Asian | 1 |
| More than one race: White, Jewish, Latinx | 1 |
| More than one race: White/ Asian | 1 |
| More than one: Black or African and White | 1 |
| Native American or Alaskan Native | 1 |
| Native Hawaiian or Other Pacific Islander | 2 |
| Nepall | 1 |
| Not reported | 2 |
| Not Reported | 2 |
| Other | 58 |
| Pacific Islander | 1 |
| Refused | 3 |
| South Asian | 14 |
| South East Asian/ East Asian | 1 |
| Unknown or not reported | 395 |
| While | 1 |
| White | 5143 |
| White & Mexican American | 1 |
| White and Afro Latina | 12 |
| White and Asian | 7 |
| White and Black | 1 |
| White, American Indian or Alaskan Native, and Hispanic or Latino | 1 |
| White, Asian | 1 |
| White, Asian, Hawaiian | 1 |
| White, Black/African American | 1 |
| White/Asian | 1 |
| White/Mixed | 1 |
| White/Vietnamese | 1 |
Ethnicity
Volumes and sessions
There are \(n=\) 135 shared volumes reporting participant_ethnicity.
\(n\) participants
| participant_ethnicity | Freq |
|---|---|
| Asian | 1 |
| Chinese | 221 |
| Choose not to answer | 2 |
| Chose not to answer | 3 |
| Chose Not To Answer | 1 |
| Decline to State | 2 |
| did not answer | 1 |
| Did Not Answer | 3 |
| Dominican | 393 |
| Hispanic or Latino | 1180 |
| Hispanic or Latinx | 3 |
| I choose not to answer this question | 7 |
| Indigenous | 1 |
| Mexican | 357 |
| More than one | 1 |
| Non-Hispanic | 5 |
| Not Hispanic or Latino | 5613 |
| Not Hispanic or Latinoo | 1 |
| Not Hispanic or Latinx | 2 |
| Not Hispanic/Latinx | 1 |
| Not indigenous | 2 |
| Not reported | 3 |
| Not Reported | 4 |
| Refused | 3 |
| Unknown or not reported | 976 |
Participant language
Volumes and sessions
There are \(n=\) 120 shared volumes reporting participant_language.
\(n\) participants
| participant_language | Freq |
|---|---|
| Arabic | 1 |
| Arabic, English | 2 |
| Bengali, English | 1 |
| Bulgarian, English, Spanish | 2 |
| Cantonese | 118 |
| Cantonese - in Mandarin | 56 |
| Catalan | 1 |
| Chinese | 1 |
| Engish | 1 |
| Englidh | 1 |
| english | 2 |
| English | 6759 |
| English - ESL | 9 |
| English & Arabic | 1 |
| English & French | 1 |
| English & Greek | 2 |
| English & Japanese | 1 |
| English & Spanish | 4 |
| English & Spanish & German | 1 |
| English & Swedish | 1 |
| English & Tagalog | 1 |
| English 100% | 14 |
| English 50%, Russian 50% | 1 |
| English 90%, German 10% | 1 |
| English 90%, Vietnamese 5%, Chinese 5% | 1 |
| English and Bengali | 1 |
| English and Malayalam | 1 |
| English and Mandarin | 1 |
| English and Spanish | 6 |
| English Chinese | 4 |
| English Danish | 1 |
| English German | 1 |
| English Mandarin | 1 |
| English Other | 1 |
| English, Japanese | 1 |
| English, Albanian | 2 |
| English, Arabic | 6 |
| English, ASL | 1 |
| English, Bosnian, Spanish | 9 |
| English, Bulgarian, French | 1 |
| English, Cantonese | 14 |
| English, Cantonese, Japanese | 1 |
| English, Cantonese, Mandarin | 1 |
| English, Catalan | 2 |
| English, Catalonian, Spanish, Tamil | 3 |
| English, Chinese | 13 |
| English, Chinese, Cantanese | 1 |
| English, Chinese, Portuguese | 1 |
| English, Danish | 2 |
| English, Dutch, Mandarin | 2 |
| English, Estonian | 1 |
| English, Farsi | 1 |
| English, Filipino | 11 |
| English, French | 18 |
| English, French, Bulgarian | 1 |
| English, French, Spanish | 7 |
| English, French, Thai | 1 |
| English, German | 7 |
| English, German, Spanish | 6 |
| English, Greek | 7 |
| English, Hebrew | 1 |
| English, Hebrew, Spanish | 1 |
| English, Hindi | 4 |
| English, Hindi, Punjab | 2 |
| English, Hindi, Spanish | 1 |
| English, Hindi, Urdu, Punjabi, Spanish | 1 |
| English, Hungarian | 3 |
| English, Ilonggo | 2 |
| English, Italian | 17 |
| English, Italian, French | 3 |
| English, Italian, Spanish | 4 |
| English, Japanese | 5 |
| English, Japanese, Spanish | 3 |
| English, Kannada | 11 |
| English, Korean | 10 |
| English, Korean, Spanish | 1 |
| English, Mandarin | 13 |
| English, Mandarin, Cantonese | 3 |
| English, Mandarin, Cantonese, French | 2 |
| English, Mandarin, Norwegian | 1 |
| English, Marwadi | 4 |
| English, Nepal | 1 |
| English, Norwegian, Mandarin | 1 |
| English, Other | 2 |
| English, Polish | 8 |
| English, Polish, French | 1 |
| English, Polish, Hebrew | 2 |
| English, Polish, Spanish | 1 |
| English, Portuguese | 11 |
| English, Russian | 17 |
| English, Russian, Spanish | 1 |
| English, Serbian, Italian | 1 |
| English, Sign | 1 |
| English, some Spanish | 2 |
| English, Spanish | 262 |
| English, Spanish, Arabic | 1 |
| English, Spanish, Farsi | 2 |
| English, Spanish, French | 5 |
| English, Spanish, Hebrew | 1 |
| English, Spanish, Hindi | 12 |
| English, Spanish, Italian | 1 |
| English, Spanish, Polish | 1 |
| English, Spanish, Portuguese | 1 |
| English, Swedish | 6 |
| English, Swedish, Spanish, Italian, French, Mandarin | 1 |
| English, Sweedish | 1 |
| English, Tagalog | 7 |
| English, Tegalog | 1 |
| English, Thai | 6 |
| English, Thai, French | 1 |
| English, Thai, Spanish | 1 |
| English, Turkish | 4 |
| English, Ukranian, Cantonese | 13 |
| English, Urdu | 2 |
| English, Vietnamese, Korean | 1 |
| English,Spanish | 2 |
| English; Spanish | 2 |
| Enlgish | 1 |
| French | 2 |
| French & English | 1 |
| French 70%, English 25%, Spanish 5% | 1 |
| French, English | 2 |
| French, English, Russian | 1 |
| French, Spanish, English | 1 |
| Fulanu, English | 1 |
| Greek, English | 1 |
| Hebrew, Russian, English | 7 |
| Japanese | 2 |
| Japanese, English | 1 |
| Kazakh, English | 1 |
| Korean | 13 |
| Korean, English, Spanish | 24 |
| Mandarin | 51 |
| Mandarin, Cantonese, English | 1 |
| Mandarin, English | 6 |
| None | 1 |
| other | 1 |
| Other | 2 |
| Polish | 2 |
| Polish, English, Spanish | 1 |
| Portuguese, English | 2 |
| Russian | 2 |
| Russian, English | 1 |
| Russian, English, Ukrainian | 3 |
| spanish | 126 |
| Spanish | 596 |
| Spanish, English | 23 |
| Spanish, English, Hebrew | 2 |
| Spanish, German | 1 |
| Tajik | 348 |
| Tseltal | 3 |
| Turkish, English | 2 |
| Ukranian, English, Cantonese, Chinese | 1 |
| Unknown | 71 |
Pregnancy term
Volumes and sessions
| vol_id | vol_url | n_sessions |
|---|---|---|
| 00564 | https://nyu.databrary.org/volume/564 | 459 |
| 00087 | https://nyu.databrary.org/volume/87 | 231 |
| 00322 | https://nyu.databrary.org/volume/322 | 173 |
| 00005 | https://nyu.databrary.org/volume/5 | 133 |
| 00114 | https://nyu.databrary.org/volume/114 | 105 |
| 00140 | https://nyu.databrary.org/volume/140 | 97 |
| 00162 | https://nyu.databrary.org/volume/162 | 93 |
| 00868 | https://nyu.databrary.org/volume/868 | 77 |
| 00004 | https://nyu.databrary.org/volume/4 | 67 |
| 00136 | https://nyu.databrary.org/volume/136 | 62 |
| 00163 | https://nyu.databrary.org/volume/163 | 55 |
| 00827 | https://nyu.databrary.org/volume/827 | 47 |
| 01026 | https://nyu.databrary.org/volume/1026 | 46 |
| 00455 | https://nyu.databrary.org/volume/455 | 41 |
| 00123 | https://nyu.databrary.org/volume/123 | 37 |
| 00476 | https://nyu.databrary.org/volume/476 | 35 |
| 00135 | https://nyu.databrary.org/volume/135 | 33 |
| 00132 | https://nyu.databrary.org/volume/132 | 19 |
| 00124 | https://nyu.databrary.org/volume/124 | 13 |
| 00323 | https://nyu.databrary.org/volume/323 | 10 |
| 00351 | https://nyu.databrary.org/volume/351 | 6 |
There are 21 shared volumes reporting participant_pregnancy_term.
Birthweight
Volumes and sessions
| vol_id | vol_url | n_sessions |
|---|---|---|
| 00827 | https://nyu.databrary.org/volume/827 | 41 |
| 00455 | https://nyu.databrary.org/volume/455 | 35 |
| 00444 | https://nyu.databrary.org/volume/444 | 19 |
There are \(n=\) 3 shared volumes reporting participant_birth_weight.
\(n\) participants
| participant_birth_weight | Freq |
|---|---|
| 10.3 | 1 |
| 2.7 | 1 |
| 3.38 | 1 |
| 4.11 | 1 |
| 5.11 | 1 |
| 5.3 | 1 |
| 5.4 | 2 |
| 5.7 | 1 |
| 5.8 | 2 |
| 5.9 | 1 |
| 6 | 2 |
| 6.1 | 1 |
| 6.10 | 1 |
| 6.15 | 1 |
| 6.25 | 1 |
| 6.3 | 2 |
| 6.375 | 1 |
| 6.4 | 1 |
| 6.44 | 1 |
| 6.5 | 1 |
| 6.7 | 3 |
| 6.75 | 1 |
| 6.8 | 1 |
| 6.9 | 2 |
| 7 | 6 |
| 7.0 | 3 |
| 7.1 | 4 |
| 7.11 | 1 |
| 7.12 | 1 |
| 7.2 | 3 |
| 7.25 | 3 |
| 7.31 | 1 |
| 7.375 | 1 |
| 7.4 | 3 |
| 7.56 | 1 |
| 7.6 | 4 |
| 7.7 | 3 |
| 7.75 | 1 |
| 7.76 | 1 |
| 7.8 | 2 |
| 7.875 | 1 |
| 7.9 | 1 |
| 8 | 3 |
| 8.0 | 1 |
| 8.125 | 1 |
| 8.13 | 1 |
| 8.14 | 1 |
| 8.15 | 1 |
| 8.2 | 1 |
| 8.25 | 1 |
| 8.3 | 2 |
| 8.375 | 2 |
| 8.4 | 1 |
| 8.44 | 1 |
| 8.5 | 1 |
| 8.56 | 1 |
| 8.6 | 1 |
| 8.75 | 1 |
| 9 | 3 |
| 9.44 | 1 |
Disability
Volumes and sessions
There are \(n=\) 87 shared volumes reporting participant_disability.
\(n\) participants
| participant_disability | Freq |
|---|---|
| Acid Reflux | 1 |
| ASD | 225 |
| atypical | 3 |
| Atypical | 1 |
| atypical hand | 1 |
| baby did not pass hearing test for the right ear when he was born | 1 |
| Beckwith-Weidemenn Syndrome (no delay) | 1 |
| CMT | 1 |
| delayed speech | 1 |
| evaluated for speech | 2 |
| gross motor delay | 1 |
| Hip arthritis | 1 |
| No | 23 |
| none | 3 |
| Sprained ankle (3 wks ago) | 1 |
| ty | 1 |
| typical | 5805 |
| Typical | 162 |
| Unknown | 7 |
Country
Volumes and sessions
| vol_id | vol_url | n_sessions |
|---|---|---|
| 00564 | https://nyu.databrary.org/volume/564 | 459 |
| 00390 | https://nyu.databrary.org/volume/390 | 18 |
There are \(n=\) 2 shared volumes reporting participant_country.